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Yes. The Foundation is a 501(c)(3) nonprofit organization designated by the Internal Revenue Code. Tax id# 94-3130081
To date, The Epidermolysis Bullosa Medical Research Foundation has funded over $5 million in research. We currently fund Stanford University and The University of Minnesota.
The Foundation donates a full 99% percent of all money donated directly to the Foundation’s research programs. No salaries are paid and administrative costs are kept to a minimum.
Yes. For more information, see the DONATE section of our Web site.
Many large corporations have matching gift programs and will match your donation to a charitable organization. It’s an easy way to double or even triple your personal contributions to The EBMRF. You should talk to your human resources representative to find out if your company has such a program and how you can participate.
Although we are a small, all volunteer office, we are always interested in volunteers for our LA based events and for supporters to help raise awareness through promoting our merchandise, getting sponsors for events or product donations for special events. For more ways to help, see the GET INVOLVED section of our website.