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Is the Foundation a nonprofit organization?

Yes. The Foundation is a 501(c)(3) nonprofit organization designated by the Internal Revenue Code.  Tax id# 94-3130081

How much money has the Foundation given to research so far?

To date, The Epidermolysis Bullosa Medical Research Foundation has funded over $5 million in research. We currently fund Stanford University and The University of Minnesota.

How much of the money donated actually goes to research?

The Foundation donates a full 99% percent of all money donated directly to the Foundation’s research programs. No salaries are paid and administrative costs are kept to a minimum.

How can I make a donation?

Donations are gladly accepted by mail, and online. For more information, see the DONATE section of our Web site.

Can I make a donation in honor or in memory of someone?

Yes. For more information, see the DONATE section of our Web site.

What is a corporate matching gift and how can I make one?

Many large corporations have matching gift programs and will match your donation to a charitable organization. It’s an easy way to double or even triple your personal contributions to The EBMRF. You should talk to your human resources representative to find out if your company has such a program and how you can participate.

Can I raise money for the Foundation?

Yes. Please visit the GET INVOLVED section to learn more. We are grateful for the help of supporters throughout the country who raise money for us through benefits, auctions, marathon sponsorships, club fundraisers and other creative and fun events.

Can I volunteer?

Although we are a small, all volunteer office, we are always interested in volunteers for our LA based events and for supporters to help raise awareness through promoting our merchandise, getting sponsors for events or product donations for special events. For more ways to help, see the GET INVOLVED section of our website.