Events

STING & CHRIS CORNELL ROCK4EB 2017

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2017 rocked in the New Year with soulful and powerful performances by international rock stars Sting and the late Chris Cornell. Hosted by comedian Zach Galifianakis, the event drew our biggest crowd yet and helped raised over $700,000 for EB Research. We are grateful to Alex & Ani for sponsoring the evening. Thanks to everyone who donated to our amazing silent auction and our incredible food vendors who donated food tastings from Coffee Bean, PokPok LA, Chipotle, Pink’s Hot Dogs, D’Amore’s Pizza, Sprinkles Cupcakes, Treats, Spartina, Little Beach House Malibu, King’s Seafood and Great Taste Catering, Redbull

We mourn the passing of our dear friend Chris Cornell. The world lost such a gifted and kind soul whose music and generous spirit will live on in our memories.


ED SHEERAN ROCK4EB 2015

What an amazing night as Grammy Winner and international musical sensation Ed Sheeran brought everyone to their feet at our 3rd Annual Rock4EB! in Malibu. Thanks to our supporters, over 600 guests were treated to delicious food tastings from Nobu, Pink’s Hot Dogs, Akasha/Sambar, Prova Pizza,Treats Frozen Yogurt, Georgetown Cupcake, Wally’s Vinoteca, Chipotle and tasty libations from Redbull,  Rums of Puerto Rico, and Coffee Bean & Tea Leaf, followed by an amazing performance by Ed. Special thanks to Cadillac for sponsoring the evening. Thanks to our generous donors, the evening raised over $600,00 which will help fund critical research.

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Judd Apatow & Friends 2014

Laughs were all around with writer/director Judd Apatow & Friends at Largo, raising over $10,000 for The EBMRF. Judd was joined onstage by singer Ryan Adams, as well as surprise guests Adam Sandler, David Spade, Garry Shandling and Pete Holmes for an evening of hilarity and charity.


Rock4EB 2014 With Jackson Browne

Jackson Browne & David Spade hosted our 2nd Annual Rock4EB fundraiser in Malibu and helped raise over $400,000 for research. Among the over 400 guests were Bill Maher, Adam Sandler, Courteney Cox, Orlando Bloom, Kaley Cuoco-Sweeting, Judd Apatow and others. Thanks to everyone who came out and supported and thanks as well to our sponsors SUJA Juice and Sabra.

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Eddie Vedder Rocks4EB

The EBMRF partnered with Heal EB and kicked off EB Awareness week 2013 with a private event in Malibu, hosted by comedian Zach Galifianakis & legendary Pearl Jam frontman, Eddie Vedder. Over 350 supporters enjoyed an afternoon of delicious food and wine, silent auction, followed by a magical evening of performances by Eddie, and surprise guests Natalie Maines, Jeanne Tripplehorn, Tim Robbins, Adam Sandler, Catherine Keener and more. We are truly grateful to Eddie, Zach and everyone who came out to raise awareness and funds for EB.

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Ride. Sweat. Support. Hydrate.

On October 15, 2012, 54 enthusiastic riders did just that and helped raise $2,900 for The EBMRF. Thanks to Kaley Cuoco and SOUL CYCLE West Hollywood for co-hosting the event and to everyone who gave of their time. And sweat.


EBMRF is on a Roll!

Old Navy Rock & EBowl was attended by over 200 bowlers ready to get a strike or spare for EB—Families got the chance to bowl next to celebrity supporters Courteney Cox & David Arquette, James Marsden, Josh Hopkins, Scott Foley, Kaley Cuoco, Allison Janey and others while munching on PopChips and pizza. Read More »


Malibu Picnic

The beautiful outdoors and ocean views were the backdrop of our Family Picnic for the 2009 opening of The Lumber Yard in Malibu. Sponsored by Sinupret & Yogen Fruz, the event included kids activities, great food, and fabulous shopping. Hosts James Marsden, Courteney Cox & David Arquette joined other celebrities and families in a fun day to raise funds for the EBMRF.

Click here to see photos from the event.


HOP for EB

Guests were treated to a fun family afternoon with the private screening of Universal’s HOP co-hosted by James Marsden and Kaley Cuoco, while attendees Brad Pitt, Skeet Ulrich, Elizabeth Perkins, Adam Sandler and others brought their families to enjoy the movie, with fabulous treats from Blowfish and delicious tastings from Bolthouse Farms, A Sweet T., Along Came Mary, Pirate Booty and Polkatots Cupcakes.

Click here to see photos from the event.


Pizza for EB!

The EBMRF raised $1,000 during EB Awareness 2011 week with CPK. Friends and family joined The EBMRF for 2 great days of pizza and fun!

 


La Cachette Bistro

Guests waved Bonjour!, sipped champagne and bid on amazing auction items as they tasted the menu from renowned French chef Jean Francois Meteigner who hosted a delicious brunch at his new La Cachette Bistro in Santa Monica.  Read More »


GivEBig 2008

The EBMRF was joined by celebrity supporters Jennifer Aniston, Orlando Bloom, Courteney Cox, Eva Longoria, Kate Beckinsale, James Marsden, Jessica & Ashlee Simpson, Casey Affleck, Rashida Jones, Eve and others to celebrate the launch of their GivEBig campaign to raise $1 million. Thanks to Stiefel Laboratories’ generous donation, the night was a huge success! Executive Vice President, Todd Stiefel, made the surprise announcement at the event via phone to co-host Ken Paves, confirming that the Company would match any donations up to $1 million. The private event was held at Beso in Hollywood and brought out supporters for an evening of good food, good music and giving back. The event, which was filmed for Oprah, was highlighted on her show the following week and helped bring EB into the spotlight!

View Oprah video
Read People article
Read InStyle article


EBingo

The EBMRF partnered with Kinerase to host 300 guests for an outrageous evening of Drag Queen EBingo at the Comedy Store in Los Angeles. Reese Witherspoon, Courteney Cox & David Arquette, Ricki Lake, David Spade, and other supporters enjoyed a hilarious evening of Bingo, a silent & Live auction and other surprises, raising almost $200,000 for the EBMRF. Our sincere appreciation to Along Came Mary Catering, The Comedy Store, Kinerase and all our guests.

Read Access Hollywood transcript
Read LA Mag article
Read LA Times article
Read Angeleno article


Coach Store Opening

COACH hosted a luncheon for the opening of their new Beverly Hills store as a benefit for the EBMRF.  Shoppers delighted in the fun filled afternoon with handbags, clothing and accessories all under one roof.

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Hosted dinner with Eva Longoria

On Nov 2nd 2006, Desperate Housewives star Eva Longoria, hosted an intimate dinner to benefit the EBMRF. Through hers and her guests’ generosity, we were able to grant wishes to many EB families with special needs such as strollers, computers, health care items and sewing machines (to make shoes), in addition to sending 10 kids to Camp Wonder!


Private Evening with Vacheron Constantine

Vacheron Constantin hosted a private evening under the stars for more than 250 guests, who came to listen to Platinum Recording artist, John Legend, while also helping to raise funds and awareness for EB. Vacheron Constantin presented a check for $100,000 to the EBMRF. Guests included Jennifer Aniston, David Arquette, Rebecca Romijn, and Holly Robinson Peete among others. Our many thanks to VC and all who came out to support us.

Read InStyle article


Coach Luncheon

COACH once again partnered with the EBMRF in Los Angeles to host a luncheon for their new fragrance-The event drew over 200 guests, including celebrity supporters Courteney Cox & David Arquette, Catherine Keener, Jacinda Barrett, Eva Longoria, Nicolette Sheridan, Demi Moore and others. Over $50,000 was raised for EB research! Check out the coverage from US Weekly.

Click here to see photos from the event.


CelEBration On The Pier

The EBMRF took to the water as we hosted our First Annual CelEBration On The Pier in Santa Monica on September 29, 2007, hosted by Courteney Cox & David Arquette and KINERASE-Games, rides, music and entertainment awaited the over 700 guests who attended. Guests included Adam Sandler, James Marsden, Kate Beckinsale, Kyle Chandler, Dermot Mulroney, Catherine Keener and others. It was a great day for EB families!

Click here to see photos from the event.


EB Rocks The Laserium!

The EBMRF and 250 supporters took a trip back in time at the new Laserium Show in Hollywood to experience the sights & sounds of classic rock music and an awesome laser show. The event raised over $9,000 for EB research.


Charlie & The Chocolate Factory Screening

Courteney Cox Arquette and David Arquette, along with Kinerase and the EBMRF hosted a party and benefit screening of the new Charlie & The Chocolate Factory, starring Johnny Depp. The event, which garnered much media attention was a sold out, celebrity filled event and raised over $190,000 for research.

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Silverspoon Hollywood Buffet

The Silverspoon Hollywood Buffet played host to the EBMRF as the beneficiary of its exclusive event in Beverly Hills.
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